Mountains and Molehills

 “Don’t make a mountain out of a molehill”  is a saying often repeated.   

Lately we have been struggling with Peter because he often latches on to something that to us seems like a small and insignificant thing.  However to him for whatever reason it is a big deal, usually one he cannot move past until it is correctly and fully resolved to his liking
.  When we are at home and/or not under time constraints and/or other responsibilities it is a bit easier to navigate.  Sometimes we are easily able to distract him from whatever he is hyper focused on.  Other times nothing will distract him.  Sometimes it a simple thing; fixing the seam of his sock, finding a stuffed animal, Lego, or rock that he suddenly remembered.  These easy wins are nice and allows us to continue with life or whatever we were trying to do.  Other times he struggles to describe what it is that he wants, needs or express what needs to happen for him to move on.  These times are frustrating, often involve tears.  In these moments we are thankful for God’s grace and the patience to walk through these things.  Thankfully at this point these are not daily occurrences and we work hard to try to keep them from happening where we can.  Peter’s sensory issues seem to be increasing as well.  Again thankfully at this point they are relatively easy to manage.   

 

Life continues to be full and busy.  We had a wonderful Christmas break.  We were able to celebrate Christmas with my parents and as a family before Christmas.  We had a wonderful Christmas eve service with our church family and then flew to Florida to be with Joe’s family.  We had a wonderful visit filled with crafts, games, Lego, stories, and adventures (some of Peter’s love languages).  We came back and jumped right back into life.  

 

Next week we have an IEP meeting for Peter. One of the main topics being his transition to 4^th grade and a new school building.  We are amazed at Peters continued learning.  He is working hard at tactile reading.  Even with all that is going on in his brain and his body he is still working so hard, learning and growing.  In two weeks he has his check up with his Batten’s team which happens every 6 months. 

 

This journey that we are on with Peter has helped us have perspective on the mountains and mole hills of life.  The mountain of his diagnosis sometimes seems insurmountable but then Peter gives us a hug and a snuggle or giggles with joy over something silly.  Or someone on Team Peter supports us in consistent or unexpected ways.  Watching Peter and Jacob grow together continues to be a joy.  The other day they snuggled together in their bean bag chair and I said a prayer that they would always share a special and significant bond. 

 

Speaking of Jacob he is growing with leaps and bounds.  He is generally an easygoing happy baby unless he is teething, tired or hungry.  He is incredibly curious and doesn’t miss much (except his nap occasionally J ).   Our family is blessed.  Thanks for reading, praying, loving and supporting us.  

 

We are hopeful for the trial that is coming this Spring.  Pray with us for lots of moments of joy and for the ability to keep things in perspective.